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Department of Journalism新聞系  |  Bachelor學士  |  2014
00:15:0000:15:00  |  Documentaries紀錄片

Exceptional. Parents.

What’s it like to be a parent of a child with a rare illness? Yat Long was born with Mucopolysaccharidosis, a rare disorder affecting his bone structure. Yan Ling developed Multiple Sclerosis (MS) as a teenager. Her father has tried numerous treatments to no avail. Caring for your child is a parental instinct, but for these families, do they have enough support?
不同國家或地區對罕見病各有定義,香港則沒有。朱逸朗患上黏多醣症,進行骨髓幹細胞移植手術,可惜未達預期效果。朱父趁他年紀尚小,希望盡量改善他的病況。成年的鍾燕玲突然患了多發性硬化症,鍾父遍尋療法,徒勞無功。他年事已高,仍盡力照顧女兒。侏儒症家長與醫生合作,成立骨骼病的基金會,聯繫其他家長。他們參加聚會,分享資訊,減少憂慮,各患者也不會感到孤獨。許多父母對子女寄予厚望,這班父母會有什麼願望呢?
APA: FONG, Yim Mei方艷媚. (2014). 罕‧爸媽罕‧爸媽. Retrieved from HKBU Heritage: https://heritage.lib.hkbu.edu.hk/routes/view/ids/HER-010921
MLA: FONG, Yim Mei方艷媚. "罕‧爸媽罕‧爸媽". HKBU Heritage. HKBU Library, 2014. Web. 08 Oct. 2022. <https://heritage.lib.hkbu.edu.hk/routes/view/ids/HER-010921>.

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